Wednesday, October 10, 2012

SPINAL IMPLANT ALLERGIC REACTION OR REJECTION?


There is a valid explanation as to why the human body rejects itself and does not accept a metal implant. The body has its own way of making an adjustment and is building up its own defense barrier. Immune cells do have their own specialized circulatory system known as the lymphatic system.  Lymphatic fluid bathes the body as it transports white blood cells to areas of signs of infection, injury or abnormal cell growth. These immune system cells are located in the lymph nodes throughout the body, known as the thymus, bone marrow and in the spleen which manufactures leukocytes or (white blood cells) in response to any foreign invaders when they are detected in the body.

The purpose of the immune system is a "force field" which protects the body against foreign invaders such as pathogens, fungi, bacteria and other viruses. The immune system fights on our behalf day in and day out.  Antigens are anything that is foreign or "non-self" which will turn or attack the body when a foreign substance is being detected in our immune system.  Antigens do have specific proteins and cell surface molecules become tags that the immune system cells recognize and attack.  When a Y shape protein is released from the plasma cells into the blood, they are known as antibodies. It is the antibodies job is to help kill or destroy the foreign substances by signaling the body to activate these natural killer cells both of which kill the antigenic invader. Natural killer cells destroy antigens by releasing cytokines proteins directly into these unhealthy cells such as cancer or other autoimmune diseases.

Allergies nevertheless occur when the immune system overreacts to any suspect environmental allergen.  When there is recognition of an antigen, the allergic response can occur when the body's immune response goes into overdrive when it tries to rid itself of a foreign invader  These antibodies continue to exist in a person's body, so that if the same antigen is presented to the immune system again, these antibodies that are already present are ready to do their job. immunization thus introduces the body to an antigen in a way that doesn't make someone sick, but does allow the body to produce antibodies which will then protect the person from future attack by the germ or substance which produces this particular disease.

In the case of a metal implant exposure in a human being,  he or she does not recognize the foreign body as part of oneself. During this time of exposure, these antibodies are building up their defense system, and continue to mount an attack on the human body with a systemic reaction like a vengeance that is serious enough to cause permanent illness, infection and chronic pain. Immune response to implants can include hypersensitivity not limited to pacemakers, dental implants, and other types hip and knee orthopedic hardware. 

You can see a below a documentated time frame of photographs that I had taken over a year of my dermatological flare-ups of my body and extremities occurring after my operation. Soon after my implantation and lumbar spinal fusion, I began to notice these annoying symptoms of unusual neurological symptoms such as dizzy spells, insomnia, burning sensations of  body pain, outbreak of skin irritations, discoloration, rashes, with increased bone tenderness and constant fatigue throughout my entire body.









 
In May 2011, I consulted a rheumatologist for further evaluation and treatment of this unusual medical problem. What facts and information that I received stunned me altogether. Not only was
the doctor not aware on what was really going on inside of me, she was under the impression that all I had fibromyalgia.  I had sought another opinion with a dermatologist who dismissed my medical concerns altogether.  A UCLA dermatologist who I also consulted never thought of ordering additional tests such performing metal patch testing or a muscle biopsy to check for myositis. For nineteen months, I had to endure constant agony, bizzare and debilitating symptoms which I knew deep down inside was killing me and there were no physicians whom I  felt I could turn to provide me with a correct diagnosis or a chance for recovery.  

My blood markers were analyzed for other immune diseases such as lupus, Sjogrens syndrome, and (RA) rheumatoid arthritis. My ANA titer had skyrocketed.  Deep down inside, I instinctively knew that something was seriously wrong with me. My medical symptoms worsened over time which profoundly had affected my level of functioning in every area of my daily living.  I was in excruciating pain and in terrible emotional distress. I felt exhausted, fatigued and desperate to get answers from my orthopedic surgeon and other numerous medical specialists whom I consulted for further diagnosis and treatment.  I was met with their lack of concern or their indifference to save my life.
 
Where do you begin if you have a similar dilemma in your medical problems? If you suspect a pedicle screw allergy, you should document them in a patient daily diary or log if you do experience any of these symptoms such as the inability to sleep, having a strange metallic taste in your mouth, any signs of a neurological loss of balance, sudden hearing loss, migraines or unexplained pain, systemic weakness (feels like all of your energy is drained from your body), depth perception off (spilling drinks or dropping things), increased back or neck pain with tenderness, or worsening depression for no obvious reason. Look out for various and obvious changes in skin color, pigmentation, and intermittent flare-ups of dermatological reactions.
 
I was told by numerous doctors that they couldn't find anything wrong with me. However, I felt there was correlation to the metal implant in my body and other chemical changes that were going on inside my body which were causing these types of these immunity and dermatological problems. The only way to know for sure to find out if the metal implant is the source of the irritant is to have the implant entirely removed to eliminate it as a possibility. I had spent hours researching the internet thoroughly for answers to my condition however, I came to conclusion  that there no concise agreement amongst medical professionals and more conflicting information. It is rare but at least ten to fifteen percent of the human population can react very badly to metal implants. 
 
Device implant failure has been reported in surgical orthopedic and neurological or cardiac cases stating that metal debris is released by the grinding of artificial metal hips, which causes local tissue death around the joint and may increase metal cobalt and chromium ions in the bloodstream. Various studies have reported there were small metal particles that were flaking off and getting into the human body's local surrounding tissues, thus causing systemic pain and increased inflammation in other joints and the spinous processes.
 
 There is a well known website known as the Melisa Medica Foundation which is a laboratory with specific testing procedures that specifically determines a patient's susceptibility to specific types of metal ions. Their testing panels methodically analyzes the body's chemistry lymphocyte hypersensitivity to titanium and other alloy metals. Their laboratory testing method can detect accurately the allergy antibody blood markers which are looking at metal panels better than dermal skin patch testing which is currently available at a dermatologist's office.  Note: There can also be false positive results in any laboratory testing which may not show any signs of a metal reaction.
 
There are different grades of implant metal alloys commonly used in surgical procedures both in the medical and dental industry. To be safe, and not sorry later, anyone under a doctor's care should insist on allergy testing prior to any proposed spine surgery. The most common metal compositions that are used in the manufacture of pedicle screws, hooks and rods are stainless steel, titanium, nickel, cobalt, aluminum and vanadium.  However, other types of materials found in implants will vary from metal to metal implant in the industry. These alloys may react in at least 4% of the population as I stated which may cause havoc with the body's immune system therefore, cause it to eventually break down and destroy itself. 
 
A person with an unknown hypersensitivity will surely have an increased response to an implanted surgical device. If not removed within a short period of time, the human body's antigen immune response could lead to serious autoimmune disorders as well as neurological disturbances such as fibromyalgia, multiple chemical sensitivities, sinusitis, neuralgia, loosening of the implant or a bone infection. These individuals with compromised immune systems with orthopedic screws implanted  in their cervical or lumbar spine have experienced dizzy spells, brain fog, or unusual chemical metallic tastes, myositis and bone tenderness.
 
Every individual is different.  Therefore, you need to be vigilant in monitoring these symptoms. You should be your own advocate to make sure that your physician is aware of your past medical history of allergies to eliminate its cause and to avoid any future exposure to a metal implant prior a spinal fusion.  You may refer to the above links which I have posted on this blog to find out what specific testing procedures which are available as well as further discussions on these specific causes.  

90 comments:

  1. I have just had the Melisa testing for metals implant and tested positive for molybdenum. The orthopedic surgeon did say he would replace it but now will not even return my phone call. I have emailed him and have for two years been saying that my body doesn't like the hardware. I am in so much pain I want to give up. Finally found a doctor in Durham that is experienced in this area and is going to remove the hardware. Anyone experiencing this problem, feel free to contact me. It is a nightmare.....

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    1. I am experiencing the same thing. A lot of inflammation in my lower back hurt where the hardware is I'm now bedridden pain weakness and the constant headache and a metal taste in my mouth at everything I can do just to take a shower I'm so depressed I don't eat I can't sleep right it's like a nightmare I lost track of the days I like living my life in darkness I pray that I get out of this

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    2. I am experiencing the same thing. A lot of inflammation in my lower back hurt where the hardware is I'm now bedridden pain weakness and the constant headache and a metal taste in my mouth at everything I can do just to take a shower I'm so depressed I don't eat I can't sleep right it's like a nightmare I lost track of the days I like living my life in darkness I pray that I get out of this

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    3. Chuck, see my comment below. I think people suffer from these reactions more than any surgeon dares admit. You find VERY LITTLE on the Internet, which I find amazing. One can usually find everything online. Look up MELISA Foundation. Read their information and make your surgeon read it. Make him order your blood to be tested at the MELISA lab. Find a good rheumatologist and see if you have developed post traumatic fibromyalgia like I did. There are treatments that can help ease the pain. Good luck and God bless

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    4. has anyone found any relief of their symptoms? My husband had lumbar surgery-disc replacement with fusion in 2013. felt great for about 6 months, and has been on a very slow but steady decline since. he is now almost housebound, symptoms of chest pains, SOB, small fiber neuropathy, fibromyalgia, depression, burning and stabbing roaming pains, blurred vision, electrical sensation down his neck, uncontrollable jerking, fatigue....list goes on and on. Surgeon just says his hardware "looks good", offered to take it out, but acts like he's crazy. he spends his time between pain management, neurologists....all test him for things, then when it comes up negative, they don't have anything else to offer. we are at our wits end. rheumatologist said he doesn't have autoimmune, he can't help him. his labs show chronic muscle damage, no one will do muscle biopsy. If anyone has any advice please email!

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    5. Which disc did he have implanted, have you done a melisa test?

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  2. The Dr decided not to take the hardware out. I have had blood test thru Melisa, lab Corp and hair analysis along with skin patch testing. Tested positive for Molybdeum thru Melisa. Normal for all implants with lab Corp. The hair analysis test was medium to high for the metals implants. The skin patch showed allergy to nickel, positive for gold, a question for the antibiotics they mix in the bone cements. I was in so much pain yesterday morning I almost puked three times. My body can't take much more and the doctor in NYC wants to wait 2 years before he considers taking it out. This is the hell you go thru because of gready and uncaring surgeons. I have followed all the instructions the doctor gave me. No relief in site. I really don't think my body will take another two years of this kind of pain. Any advise? The doctors feel Melisa testing is unreliable and the skin patch is the better results. Still no help for me. I am tired.

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    1. Time for a SECOND OPINION, dear Mary Jo. You owe no allegiance to your old surgeon. Allergic reactions happen....I'm living proof.

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    2. Third or fourth opinion, if needed. Maybe a good attorney.....

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    3. I just came across this page and seen your post. How are u doing now has anything changed?

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    4. Mary Ho I read your story, I hope you are OK by now. I feel you

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    5. Mary Ho I read your story, I hope you are OK by now. I feel you

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    6. Mary Ho I read your story, I hope you are OK by now. I feel you

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    7. Afteryrs.Drs have not taken this serious enough. No one takes Medicaid, I was diagnosed with Prostitutes, today the filter to my kidneys aren't working properly, now Dialysis. Yes. Need to take this more seriously I never thought I'd be fighting for my life over these Damn Metal Screws&Bolts.Also Dr now days don't care if you're on Medicaid well they'll let you die. I've tried for years, to find a Dr. What has the world come to, God is good hell make a way, when or if I get out of this, I'll do all I can to make it heard for everyone going through this darkness. God Bless You All

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    8. Afteryrs.Drs have not taken this serious enough. No one takes Medicaid, I was diagnosed with Prostitutes, today the filter to my kidneys aren't working properly, now Dialysis. Yes. Need to take this more seriously I never thought I'd be fighting for my life over these Damn Metal Screws&Bolts.Also Dr now days don't care if you're on Medicaid well they'll let you die. I've tried for years, to find a Dr. What has the world come to, God is good hell make a way, when or if I get out of this, I'll do all I can to make it heard for everyone going through this darkness. God Bless You All

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    9. Afteryrs.Drs have not taken this serious enough. No one takes Medicaid, I was diagnosed with Prostitutes, today the filter to my kidneys aren't working properly, now Dialysis. Yes. Need to take this more seriously I never thought I'd be fighting for my life over these Damn Metal Screws&Bolts.Also Dr now days don't care if you're on Medicaid well they'll let you die. I've tried for years, to find a Dr. What has the world come to, God is good hell make a way, when or if I get out of this, I'll do all I can to make it heard for everyone going through this darkness. God Bless You All

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    10. Afteryrs.Drs have not taken this serious enough. No one takes Medicaid, I was diagnosed with Prostitutes, today the filter to my kidneys aren't working properly, now Dialysis. Yes. Need to take this more seriously I never thought I'd be fighting for my life over these Damn Metal Screws&Bolts.Also Dr now days don't care if you're on Medicaid well they'll let you die. I've tried for years, to find a Dr. What has the world come to, God is good hell make a way, when or if I get out of this, I'll do all I can to make it heard for everyone going through this darkness. God Bless You All

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    11. Afteryrs.Drs have not taken this serious enough. No one takes Medicaid, I was diagnosed with Prostitutes, today the filter to my kidneys aren't working properly, now Dialysis. Yes. Need to take this more seriously I never thought I'd be fighting for my life over these Damn Metal Screws&Bolts.Also Dr now days don't care if you're on Medicaid well they'll let you die. I've tried for years, to find a Dr. What has the world come to, God is good hell make a way, when or if I get out of this, I'll do all I can to make it heard for everyone going through this darkness. God Bless You All

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  3. Mary Jo, my case was very similar to yours. Had a 2 level acdf at c5-c7 in 2008 with metal plate an 6 screws. Went back to work after 6 weeks but began to get sicker and sicker. Doctors blew me off. Went round and round with numerous doctors and they just kept telling me that my pain was "depression"! By 2012 I was covered in rashes, excruciating pain throughout my body,double vision, migraines, tinnitus, chronic fatigue, flu like feeling constantly....and YES, depression and anxiety!!! Who wouldn't! FINALLY, a new doctor sent me for blood work that showed an elevated ANA titre and I was referred to a rheumatologist that diagnosed me with fibromyalgia. Not long after that I demanded a second opinion and MELISA blood testing. Sure enough, I tested positive for alloys used in the "titanium" implants. New orthopedic surgeon did revision surgery to remove old hardware.....he was SHOCKED to find black corrosion of tissue and bone, had to grind out screw holes and remove the black debris which he sent to pathology. He closed me up and I had high hopes that I would find relief from the fibromyalgia. Unfortunately, that did not happen. I suffer to this day. All the same illnesses as mentioned above but now I also have adjacent segment disease. No way will I ever let them operate again though

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    1. Hi Nancy, just came back from another spine/ hip surgeon. My bone density has worsened over the past year even though I have been on Forteo for 11 months. Spine surgeries in 2011,2013,2014, January 2015, and February 2015..

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    2. The dr. Can't remove the hardware with my bone like they are now. I read the metals allergy will cause kidney and bone deterioration. I believe that's is what's going on with me.

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    3. I am suppose to see another metabolic bone specialist and now a heart dr. The stress from all this,, you know. The thoracic spine around my chest feel like I have a vice that keeps getting tighter. My breathing is now getting labored..I feel like I have begged the dr's for my life over three years and now I have one that's listening. It may be too late. I wish there could be a way we all could get together to tell our stories. If we could save one life it would be worth it. Merry Christmas to all.. Much love and prayers to you all.

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    4. nancy I would love to have more information on your case. my name is kim griggs in 2014 I had a spinal fushion, 6months later I broke out in a bad rash all over my body, I litteraly thought I was burning from inside out! lots of pain in bottom of my feet and knees along with my left hip and numbness in left thigh. after many many doctors I finally got tested for allgery to items placed in lower back and was positive to the spacer put in.i am now being sent to different doctors to find a medicine that will counter act reaction. my next step is surgery to remove implants and replace with something else I do NOT want to go through another surgery. after reading your story I see it didn't help! any suggestions?? thanks

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    5. I had L4/L5 spinal fusion w pedicel screws and artificial disc spacer implanted 2012 , I have had increasing pain ever since . Burning stabbing from lower back into my feet , muscle cramps , pain and difficulty walking, insomnia , anxiety and worsening depression . Nothing I do helps the pain and I feel it's getting worse. I feel very unstable since the implant . How can I know if I'm having a reaction to the spacer ? My surgeon is no help all he says is the implant looks fine .

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    6. I am so glad I finally found someone with similar problems from spinal fusion. I had lumbar fusion at L5-S1 in 2012 after a failed total disc replacement in 2007. After 3 years of migraines, fibromyalgia, nausea, dizziness, chronic fatigue and constant pain I finally found a doctor that was willing to listen to me. He determined that the fusion had failed and I went in for fusion revision on 12/31/15. He also was SHOCKED to find black corrosion! The rods that were removed actually have large gouges in them where the metal has worn away. All the hardware was removed and bone graft redone with new hardware. While the migraines and other systemic symptoms have abated I am still in constant pain. II continue to be in constant painam very interested in any additional information you can share with me.

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    7. I've been diligently researching sine my 6 wk post-op 06/2018. I had an ALIF L4&5 with a titanium coated PEEK cage. Immediately I had excruciating back pain, buttocks and sides of hips burning. A revision took out stainless steel pedicle screws poteriorly. No relief! Anterior screws and plates still in place. OA revealed mild nickel sensitivity. A Itchy painful Rash developed over the incision which came back contact dermatitis. Now I suffer from fibromyalgia & CFS. In pain 24/7, pain radiating to groin, tops of thighs, shooting pain to leg knee, cramps in calves and shint splints. Brain fog, memory issues, GI symptoms and food intolerance Urinary with renal cysts, blurred vision, nausea and insomnia. Temp changes or barometric are unbearable. Pre surgery I was very active. Now sometimes it's all I can do to take a shower. After showing test to my surgeon of 18 years. He was referring me to the best orthopedic surgeon he knew. Then COVID hit. Because up opening my surgical site 3 times and sensitivities. I feel as though I also have nerve damage. I have found a peripheral nerve surgeon. Who hS greatly improved peoples lives. I will put that on hold until my PEEK test is completed. I'm 62 and 3 yrs of my life has been stolen. I'm hopeful now that I now gave a GP and pain management NP that believe me. And ordering tests to rule out other possibilities. Now it's a wait game. I'm at the point I ready to die just to be out of pain.

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  4. I had the exact same round red rashes as pictured above. Dermatologist said "metal allergies" after patch testing....and I stopped all contact with metal, even had old amalgam fillings replaced by a specialist....and I still had the rashes, flu symptoms, pain, etc........

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  5. My name is Michael Gutierrez I'm 43 I just had a fusion in my back done on July 22. Here's my situation, I injured myself at work in early March of 2015 and had a ton of lower back pain and pain that radiated down my left leg with burning and numbness typical signs of lower back injury. Since July I've had the fusion from L3 to S1 2 rods 12 screws and a cage with whatever little screws they use there. Since the surgery I've complaimed of still the lower back pain and now the pain has transferred to my right leg with constant stabbing burning and numbness from my hip to my foot. I've talked with my surgeon repeatedly about this problem and we've done steroids then another epidural x-rays and 2 more MRI's and yet all he can say is he doesn't know. I'm miserable I'm in constant pain and I don't know is not the answer I want to hear. I asked my physical therapist if it was possible that my body is rejecting the hardware he wasn't sure so here I am searching the net to find an answer. And here is the kicker the pain has now started in my left foot and calf area it's insane and life draining, I seen the mention of skin problems I have had a crazy breakout of acne and this has never been a problem other than when I was a teen could this be a side affect. I'm desperate for answers I head to Kansas city on the 30th to see a specialist there and hopefully get some answers. Thank you for any response or chat back I can get on this.

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  6. I am going thought something very simular. I had ifuse (SI-joint surgery) done Aug 7th 2015. I had asked about metal allergy 4 times before surgery. I cant wear jewerly for years now. I tried to get a belly ring w titanium done in 2011. It never healed and totally grew out in a few months. That is why I asked. I was told skin contact and bone contact were different. I have 3 titanium rods in me now. Since 2 weeks after surgery I started getting pimply type rashes popping up every where, ringing in my ears,pain in the si joint started up again and I have a high amount of inflammation at surgery site and legs. The surgeon is blaming it on smoking. I have now been on the patch for 2 weeks and no change. I went to see my internist and had reg bloodwork done. He wants it redone to test my blood sugars I thinks I have diabetes and thats why I have all my symptoms. He will not do the metal allergy testing till after the next round of bloodwork.

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  7. I too have the same problem. where can I find a dr. in Ontario?

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  8. Please can someone tell me where to find a good dr. for this condition?

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  9. I dont know what i wrote wrong the first time i will try again.
    This forum was the one to help me take the desision to remove my screws and plates.I had my fusion sep 2014 and i was worst from before the opp.I had same problems like most of you pains spots muscle pains dificulty to walk and many more problems.My doctor did a lot of tests and after a course of radiotherapies said that i was allergic to plates and screws and they had to come out.waited a few more months and April 11 did the opp.3 hours surgery came out and 2 hours after i was walking!!!Tommorow im back to my doctor but i all ready feall much better.
    The reason i wrote now is to let you know that this side really helped me when i was really bad and didnt know what to do.You guys wrote everything that i had.Pls try to find the best solution for you as well.Anything you want to ask me pls do.

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    1. Isabel, Who and where is ur Dr.? I have seen 6 ortho/neuro surgeons to date, since my last surgery February 2015 trying to get help

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    2. Dear Mary Jo Bass i left a comment below pls read it if you need something pls let me know.I know how you feal i know is not easy and it hasnt been for me as well.i still nead another opp on my cervical my problems dont have an end but at least my spinal is finished.hope what i wrote helps.

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    3. Having same side effects as all of you,does anyone know of a good Dr. In the Louisiana area?May God Bless you all

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    4. We're any of you unable to stand straight?

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  10. I've seen 3 neuro surgeons and 2 Ortho Spine sports medicine surgeons. The very last visit, was told the implant should be revised due to possible metal fragments, possible infection and severe swelling where implants were placed. I get the same answer from the surgeon that "it looks good". 24/7 on pain meds isn't the way to live when you trust your life in the professionals. It's so frustrating to get someone to fix this. I need help.

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  12. I've seen 3 neuro surgeons and 2 Ortho Spine sports medicine surgeons. The very last visit, was told the implant should be revised due to possible metal fragments, possible infection and severe swelling where implants were placed. I get the same answer from the surgeon that "it looks good". 24/7 on pain meds isn't the way to live when you trust your life in the professionals. It's so frustrating to get someone to fix this. I need help.

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  13. Hi sorry i just seen your posts im now 2 months after the opp much much better!!Guys i live in cyprus and my surgeon is cypriot living in athens and comes here to do opp.if anyone is interested i give details i will.pls if you cant follow my steps:do the injections on the area with cortizone and or do radiotherapy if this one of them stop your pain for at least 24 hours demant to make the opp.the companys that manufucture the plates the screws say to take them out.onse they stay for the time needed to stop the instability they have to come out especcially if the person feals a lot of pain or has the problems we have with them.

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    1. My doctor is in cyprus and Athens dear

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    2. Hi and thank you for sharing your story. I hope you are feeling better now. Can you please tell me who your surgeon was? I am suffering the same. I would travel anywhere for help from a knowledgeable source.

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  14. I have recurrent fever after deskectmy and vertebral fixation with bony cement and screws

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  15. I have recurrent fever after deskectmy and vertebral fixation with bony cement and screws

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  16. My husband passed away from a very rare autoimmune disease, pemphagus vulgaris, 7 years after having a cervical implant. If his history would be of use to anyone out there, please post here and I will give you my contact information.

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  17. My husband passed away from a very rare autoimmune disease, pemphagus vulgaris, 7 years after having a cervical implant. If his history would be of use to anyone out there, please post here and I will give you my contact information.

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    1. Hi Catherine my name is Kory and I have had 4 cervical surgeries and have all of the symptoms read on this site. I asked numerous doctors if I maybe be rejecting or having a reaction to my implants and they all say no without any testing. I'm sorry to hear of your husbands passing. Was it because of his surgery? What happened? I'm illiterate on computer but if you have any advice for me please contact me through my email kaw32261@yahoo.com Any information would be appreciated thank you

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    2. Hi Catherine I'm sorry to hear about your husband, did he have artificial disc replacement surgery? Thanks

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  18. Katherine, I would love to hear your story.

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  19. I am so happy to find this site. I an 50 years old. I was very active and young looking and did everything prior to my two back surgeries. I had surgery in 2014 to fuse C5-C6 using and ROI implant. I continued to have pain that the doctors said would improve. I began having severe pain in right neck and shoulder, right elbow, bilateral wrists. The pain continued to worsen. I was sent to an oath doctor who did EMG testing on my right wrist which showed sever nerve conduction problems. I had carpal tunnel and trigger finger surgery. The pain continues and I was on Hydrocodone which they increased the dosage. Pain continued and is also sever now in my lower back. Testing and scheduled for surgery on L5/S1. A peek cage and and implant placed. Still pain worsening and shoulder, elbow and both wrists getting worse. Life is almost not tolerable. Sent for Electrical studies and it showed moderate/severe nerve conduction in neck, right elbow, bilateral wrists. They are now saying the first carpal tunnel surgery was a failure and I now need surgery on both wrists and elbow. They also state that the cervicle fusion was not successful and they think the I need the implant removed and re-done. I also have developed occasional swelling and burning pain in areas. The first was one 1/2 of my face swelled up and was painful. i went to the prompt care and several doctors could not figure out what was going on. It lasted 2-3 days then resolved. Second occasion my neck swelled up and was very painful burning. Lasted 2 days and went away. Third was the same only the swelling was worse. I went to bed and woke up in the middle of the night with swollen neck burning pain. It also went away in about 3 days. Neck still very painful. I did take pictures as I look like a freak. I also have been put on a fentynI patch alone with the hydrocodone. I do not have a doctor that is comfortable doing the surgery so I am now being sent to Barnes Jewish hospital where there are physicians with more experience. After reading these posts I am confident that I may have an alley to the metals in the implants in my neck and lumbar spine. Suggestion other than requesting metal testing when I see the new physician? I have never been tested for metals.

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  20. I am so happy to find this site. I an 50 years old. I was very active and young looking and did everything prior to my two back surgeries. I had surgery in 2014 to fuse C5-C6 using and ROI implant. I continued to have pain that the doctors said would improve. I began having severe pain in right neck and shoulder, right elbow, bilateral wrists. The pain continued to worsen. I was sent to an oath doctor who did EMG testing on my right wrist which showed sever nerve conduction problems. I had carpal tunnel and trigger finger surgery. The pain continues and I was on Hydrocodone which they increased the dosage. Pain continued and is also sever now in my lower back. Testing and scheduled for surgery on L5/S1. A peek cage and and implant placed. Still pain worsening and shoulder, elbow and both wrists getting worse. Life is almost not tolerable. Sent for Electrical studies and it showed moderate/severe nerve conduction in neck, right elbow, bilateral wrists. They are now saying the first carpal tunnel surgery was a failure and I now need surgery on both wrists and elbow. They also state that the cervicle fusion was not successful and they think the I need the implant removed and re-done. I also have developed occasional swelling and burning pain in areas. The first was one 1/2 of my face swelled up and was painful. i went to the prompt care and several doctors could not figure out what was going on. It lasted 2-3 days then resolved. Second occasion my neck swelled up and was very painful burning. Lasted 2 days and went away. Third was the same only the swelling was worse. I went to bed and woke up in the middle of the night with swollen neck burning pain. It also went away in about 3 days. Neck still very painful. I did take pictures as I look like a freak. I also have been put on a fentynI patch alone with the hydrocodone. I do not have a doctor that is comfortable doing the surgery so I am now being sent to Barnes Jewish hospital where there are physicians with more experience. After reading these posts I am confident that I may have an alley to the metals in the implants in my neck and lumbar spine. Suggestion other than requesting metal testing when I see the new physician? I have never been tested for metals.

    ReplyDelete
  21. You should consult with your surgeon because they have several metals implant testing that can be performed. Some doctors do not rely on Melisa blood test. Most believe in the skin patch. Bottom line is they really do not know unless they take it out. I continue to be in a lot of pain. There are days you pray just to die because the pain is so severe. Most people do not understand. I do not understand either. I pray you find relief. I pray I find relief.

    ReplyDelete
  22. Thank you Mary Jo. I pray we all find relief and answers. I should add that they are also looking into diagnosing me with fibromyalgia and possibly testing for other autoimmune disorders. It is exhausting going through all the testing, different doctors, specialist and no-one agreeing. Not to mention the expense all while getting worse. And like you said nobody understands just how painful and hard life can be when suffering. There are days I am in so much pain I can't get out of bed or do anything. I will pray for you to find relief as well. I have just set up another appointment with a new physician and I plan to have him do the metal testing.

    ReplyDelete
  23. Patty, In order to use one of the approved Melisa labs in USA my family physician had to submit a copy of his medical license. He went beyond the call of duty trying to help me and he still does. It is unfortunate for me the he isn't a neurosurgeon because there is no doubt he would try his best to help me. I have seen so many doctors trying to get help it only frustrated me. Each doctor had their own opinion. I did find one that was willing to operate but I was scared to death of how he wanted to approach the surgery. I have given up. Good luck to you and I pray you get relief. As for me , I am still in a lot of pain and take each moment...well.. just don't know anymore.

    ReplyDelete
  24. In 2011 I injured my back. I spent all of 2012 and part of 2013 in PT and pain management. We were stationed in Texas at the time and after going through more then 20 injections, 2 nerve blocks, 2 nerve burns, all of which failed, I told PCM I wanted to see a surgeon. I had a discectomy done in Dec of 2013, while staying in PA while my husband was deployed, but it failed and I had a complete disc rupture in Feb 2014. I returned back to Texas in April of 2014 and was back at pain management immediately. I had 9 more injections done that all failed so in Feb 2015 I requested again to see a surgeon. PM did not want to send me to a surgeon but instead wanted me to have a device implanted that would disrupt the signals from my nerves. I insisted on seeing a surgeon so they sent me to their "preferred" Dr. He refused to do surgery because I had gained 40 lbs since injuring my back and he wanted me to lose the weight and continue with PM. I asked for a 2nd opinion and picked the surgeon this time. New surgeon agreed I needed a fusion at L5-S1. Wasn't able to have surgery in Texas because we came down on orders to move to Georgia. Moved in Oct 2015, found a neurosurgeon immediately who agreed on needing surgery. Had fusion done Jan 2016 and developed an infection. Had 2 more surgeries in Feb and May 2016 to clean out the infection. Also had testing for metal allergy done but came back negative. After May surgery, I spent 6 weeks on a PICC line. Everything seemed to have cleared up but in Oct 2016 the infection returned. Went back in for clean out in Nov 2016 and used different sutures. Dr. thought I was having a reaction to suture material but the infection still has not cleared. I will be having my hardware removed next Tuesday, January 31st. I am only 36 and my hope was that the fusion would give me my life back but the pain has only gotten worse and my surgeon says it will more than likely never get better. I have permanent nerve damage and loss of feeling down my left leg due to having to wait so long for my fusion after my complete disc rupture. Due to being so sick with the infection, I have lost almost all the weight I gained after injuring my back. My surgeon has been amazing through all of this though. He has never brushed me off or pushed my concerns aside and he has never made me wait months or longer to go back in to fix the problem. After reading all of the comments, I feel very fortunate to have the surgeon I have. I wish all of you the best of luck in finding resolutions to your situations. Not sure where everyone is located, but I am in Savannah GA. My surgeon is Dr. Davis Reames with Neurological Institute of Savannah. For some of you, maybe seeing a neurosurgeon, as opposed to an orthopedic surgeon, may help you get the care you need.

    ReplyDelete
  25. Two weeks after my lumbar spinal fusion in 2014 my body rejected the Vicryl sutures the surgeon had used and it took 6 weeks for the wound that opened to heal and close. It didn't help that the surgeon waited 4 weeks before swabbing for infection and putting me on an antibiotic. Anyway, after my incision in my back had opened up, the leg pain I had been experiencing prior to the surgery returned. I thought once the infection was gone and the wound was healed the pain would subside and I life would go back to the way it was before my accident. Well here it is 3 years later and things have only gotten worse. Not only the pain in my back and leg(s), but my health in general. I asked the surgeon if I could be having a reaction to the metal used in the fusion and he flat out told me "NO". Now, mind you, he told me he has never (before me)had a patient or seen a patient whose body spit out sutures. So, how can he be so certain I'm not the first patient he has ever had that is having a reaction to the metal he used for the spinal fusion. I told him, I had surgery to repair a bunion in my left foot and they had put a screw in it. Every time I went up on my toes it felt like the screw was digging into my foot, the pain was awful. The doc took and xray and the screw was not touching anything in my foot. Because of the pain, the doc agreed to remove the screw. I no longer felt pain once it was removed. I have also rejected every root canal dentists have tried to give me. The pain never goes away, so before they can ever crown the tooth they end up pulling it. With all this information, the surgeon still rejects the idea that my pain could be a reaction to the metal in my back. I finally got a spinal stimulator implanted Dec 2016, only to become Septic with MRSA less than 2 weeks post-op and had to have emergency surgery to have it all pulled out. Nothing has worked to decrease the pain, but I keep trying. And now I have found a new neurosurgeon who is going to implant a new spinal stimulator in the next couple of months. We are taking all the extra precautions, with one exception, he wanted to use Vancomycin powder on the stimulation and in the incision as he implanted it, as that is the antibiotic used to treat MRSA, but I had a reaction to it while being treated for MRSA in the hospital. Guess we will have to try something else. I wish everyone out there good luck and make sure to be your own Advocate. Look up everything the docs want to do to you, inject in you or prescribe to you.

    ReplyDelete
    Replies
    1. I've had 3 surgery's &this last one I waited so long I'm scared of losing my life. The reason Doctors deny it is cause they know they'll have a Lawsuit on their hands.

      Delete
  26. The fact is that we aren't really sure what the best way to choose residents is. Sarah Wayne

    ReplyDelete
  27. For the pasted year my grandmother has been suffering from these same symptoms with recurrent infections and sinus tracks on the surgical site. She had spine surgery with plates and screws placed last April. Since then she had three other emergency surgical interventions to debride the area. The orthopedic surgeon said the infection did not reach the bone but it was closed to it. She was placed on IV antibiotics for 6 weeks, treatment that is equivalent to that of osteomelytis. She is now getting another sinus track, the infectologist does not understand what's going on and the surgeon said she will be to be placed on antibiotics for the rest of her life....

    My grandfather was a general surgeon in his country for 50 years and he can't believe the orthopedic surgeon is saying such thing. We strongly believe she probably has some sort of rejection to the implants or that the metal got infected somehow. The surgeon does not want to remove it...

    I called the lab that does the melisa testing in the USA but they don't accept patients that have medicaid or medicare... even if we pay for the testing out of pocket. They are the only lab in the U.S that performs such testing and we can't even get them to do it even if we can afford the fees.... That should be illegal.

    Can someone please help me figure out where she can get tested?

    ReplyDelete
  28. I am experiencing some of the issues younlist d in your article. I have not had any allergy testing and actually never even thought to ask for testing before surgery. I have a titanium plate attached at the c5-6 vertebrate. Which doctor did you see in Durham? I'm not too far from there and my second opinion will likely come from that area. Thank you.

    ReplyDelete
  29. I am having the same nightmare started 3 months after surgery.. no this was never discussed with the possibility of a allergy.. now my immune system is attacking my eyes I am 42 and don't think I will make it a lot longer if it isn't removed..I loved life traveled the world now I live with my mother. barely drive no one would do the surgery if they knew this without a allergy test..

    ReplyDelete
  30. Omg im not crazy. This is what is happening to me. My body has the same rashes. I had a lower back L4 L5 in 2013. 4 screws 2 titanium rods and a cage.

    ReplyDelete
  31. Hi my name is Joe and I'm new to the site. I'm 58 years old and have had surgery multiple times for scoliosis. In 1994 they did a revision and redid All of My Hardware, since then I have had nothing but problems! I've had the same surgeon for 24 years and he has really moved a couple of small pieces of hardware at my request which gave me complete relief of my symptoms at the time. I have continual pain from the rest of the hardware there remains in my spine and my doctor refuses to even discuss possibly removing it. Does anyone know of any Physicians that are willing to sit down and at least discuss the possibility of removing Hardware that has been in one spine for 24 years? I appreciate any comments good luck to all...

    ReplyDelete
  32. I had back surgery in June of 2017 removing the disc and putting in a spacer with a bracket and screws between my L5 and S1. At Christmas I started getting intense constant neck and shoulder pain so i went back to my surgeon and they did an MRI and said that my lower c spine was almost bone on bone. So got steroid injections and i am scheduled for an epidural. Anyway, about a month ago i noticed the lymphnodes in my groin area were enlarged and sore as well as in my leg. My back where the surgery was done feels..... well weird is the only way i can describe it. I went to my doctor this week and she took a blood test and found i have ATypical lympnode something in my CBC and something else regarding the lymps. I now have an appointment with a hemotologist. next friday and i just wanted to know if anyone has experienced the same??? I so freaked out that i may have cancer but i really think it may be related to the metal??

    ReplyDelete
    Replies
    1. My landlords swell up in my neck & travel to my head.It hurts I am loosing hair, it is scary. I have had 3 surgery's,i have a history of body rejecting metal. I would always have breakouts on arms, this time I'm having the hardest time finding a Dr. Who takes Medicaid, but these are signs of alley to metal

      Delete
    2. My landlords swell up in my neck & travel to my head.It hurts I am loosing hair, it is scary. I have had 3 surgery's,i have a history of body rejecting metal. I would always have breakouts on arms, this time I'm having the hardest time finding a Dr. Who takes Medicaid, but these are signs of alley to metal

      Delete
    3. My landlords swell up in my neck & travel to my head.It hurts I am loosing hair, it is scary. I have had 3 surgery's,i have a history of body rejecting metal. I would always have breakouts on arms, this time I'm having the hardest time finding a Dr. Who takes Medicaid, but these are signs of alley to metal

      Delete
    4. I'm also losing hair, exhausted to the point that I can't do anything hardly. I thought I just needed to build my strength back up. Itching from the top of my head to my toes. Difficulty breathing. Brain fog, migraines. Had a cervical fusion 6 months ago. White blood count is elevated. I live in Georgia & I'm going to request this test. Thx for everyone's post. Now I know I'm not crazy & this is real. I will be praying for everyone & hopefully I can find a Dr. willing to help.

      Delete
  33. aw man this is unbelieveable what Im reading and fits me to a T. herniation L4 discectomy and lanx spacer fusion 9/18. 10 days post op infection. sutures removed antibiotics and wound vacc. healed thanksgiving. extreme fatigue. rash. stiffness. return to work jan 2 4 hours a day. pulled out march. sed rate consistently elevated. feel like ive aged 10 years. work comp. very difficult to get into rheum w WC. apt june 4th. I will def ask about this metal testing!

    ReplyDelete
    Replies
    1. Did u get a rash like scaly red random bumps

      Delete
  34. In some instances, in the event the muscles around the vocal cords seize, the man or woman may start to cry out or scream at the launch of a seizure. If you are more curious about دكتور باطني then you can learn more about it on tebcan.com.

    ReplyDelete
  35. Ive had many issues after my lumbar fusion but this wierd rash is overwhelming me I got first 2 bumps 2 days after surgery and now 6 months later my body looks horrible its 1 to 3 at a time never in the exact place its everywhere on me IDK what to do my primary doc says if it was screws it would be localize is this true?

    ReplyDelete
  36. I had a titanium implant in my c 3-4, 4-5 spine and within a few weeks, started experiencing tinnitus. My migraines increased in intensity. I am dizzy when I stand, and have fallen several times. I have periods where I can’t think of a common word, or someone’s name. I’ve always been very sharp, this is beginning to scare me. But, the worst thing is like tongue spasms. I’ll try to have a conversation and it’s like suddenly my tongue won’t cooperate. This fluctuates in intensity. Anyone experience this?

    ReplyDelete
  37. I have being on blog Sites for a while now and today I felt like I should share my story because I was a victim too. I had HIV for 6 years and i never thought I would ever get a cure I had and this made it impossible for me to get married to the man I was supposed to get married to even after 2 years of relationship he broke up with me when he finds out I was HIV positive. So I got to know about Dr. Itua on Blog Site who treated someone and the person shared a story of how she got a cured and let her contact details, I contacted Dr. Itua and he actually confirmed it and I decided to give a try too and use his herbal medicine that was how my burden ended completely. My son will be 2 soon and I am grateful to God and thankful to his medicine too.Dr Itua Can As Well Cure The Following Disease… Cancer, HIV, Herpes, Hepatitis B, Liver Inflammatory,Diabetes,Fibroid, Get Your Ex Back, If you have (A just reach him on drituaherbalcenter@gmail.com Or Whatsapp Number.+2348149277967)He can also advise you on how to handle some marital's issues. He's a good man.

    ReplyDelete
  38. Sorry but HIV has nothing to do with body rejecting metal screws? Your on wrong site. God Bless You though

    ReplyDelete
  39. Dr.s have put me off to remove metal screws) & bolts it's gotten to my kidneys. Lawsuit is on

    ReplyDelete
  40. Every story I have read is from body rejecting metal screws again I have been threw this 3xs.Plus I'm on Medicaid and no Surgeons want to take anymore. God Bless everyone

    ReplyDelete
  41. Every story I have read is from body rejecting metal screws again I have been threw this 3xs.Plus I'm on Medicaid and no Surgeons want to take anymore. God Bless everyone

    ReplyDelete
  42. Dr.s have put me off to remove metal screws) & bolts it's gotten to my kidneys. Lawsuit is on

    ReplyDelete
  43. Lana Romero did you start with a rash by your incision? I just had my daughter look at my back and she took a picture. There are bumps in a perfectly straight line going from top to bottom of my incision. I’m 3 years out from surgery.

    ReplyDelete
  44. Never had that but sounds like you may be allergic to metal. Breakouts have always been in a different places each time for me.

    ReplyDelete
  45. Never had that but sounds like you may be allergic to metal. Breakouts have always been in a different places each time for me.

    ReplyDelete
  46. I had a Zimmer Biomet Mobi C artificial disc place in my neck in October of 2015. After 6 months, my upper body started to swell and I broke out in a rash across my chest. I had lightheadedness,dizziness that would turn into vertigo and severe headaches. I had head sweats and hot flashes and shortness of breath, flushing and redness across my face. My body ached constantly and it would all happen in daily episodes. It took 2 years of seeing every type of doctor to find out what was wrong. None of them believed that I could be having a reaction to the implant. I finally had a patch test done by an allergist with the actual piece they put in my neck. It was positive, so we thought it was a reaction to the metal. It took 7 Neurosurgeons before I found one to remove it. I had surgery in January of 2019, the Mobi C disc had corroded in my neck and he had to break my neck to drill it out, then proceeded to do a 3 level bone fusion with titanium that I had been tested for and had no reaction. I was healing very well and all the symptoms had gone away within 2 months. At the end of the 3rd month, I started having the same type of reaction again. I got samples of the plates, screws and cages used. Turns out I wasn't allergic to the metal, I was allergic to the plastic in the cages they used. It is called PEEK (Polyetheretherketone)cages. It is very rare, there is only 1 case study I can find so far, but..... I spent 2 years researching metal hypersensitivity and that was also rare at the time, less than 1%. Now it's over 15%. So I would suggest you get a sample from your doctor of exactly everything that was put in you and have a patch test done by an Allergist/Immunologist. You can always contact the manufacturer as well. most of them have a complaint dept. Then go to your surgeon with the results. Don't give up. I'm still fighting to have the cages with the polymer(PEEK) removed and that should happen soon. It will be a difficult and will be replaced with solid titanium cages that I will be patch tested for prior to surgery. From my experience, I suggest everyone get patch tested with everything they are going to use prior to surgery and maybe it can help save someone from all the pain and frustration that I have suffered. Don't give up! There is always Hope!

    ReplyDelete
  47. Hello everyone, i'm Linda Harry from United State i was diagnosed with Parkinson Disease  for over 6 years which made me loose my job and my relationship with my Fiance after he discovered that i was having Parkinson, he departed from me, and i tried all my best to make him stays, but he neglected me until a friend of mine  from UK told me Great healer, who will restore my life back with his powerful healing herbal medicine. then he  sent me his email address to contact him- drimolaherbalmademedicine@gmail.com. and i quickly contacted him, and he said my condition can be solved, that he will treat the disease immediately only if i can accept trust on him and accept his terms and condition, i Agreed because i was so much in need of help by all means, so i did all he instructed me to do. And surprisingly after two weeks, He sent me a text, that i should hurry up to the hospital for a checkup, which i truly did, i confirm from my doctor that i am now ( PARKINSON NEGATIVE) my eyes filled with tears and joy, crying heavily because truly the disease deprived me of many things from my life, This is a Miracle, dr imoloa also uses his powerful herbal medicine to cure the following diseases:  lupus disease,  mouth ulcer,  mouth cancer, body pain, fever, hepatitis A.B.C.,   syphilis,  diarrhea,  HIV/AIDS,  Huntington's Disease,   back acne,  Chronic renal failure,   addison disease,  Chronic Pain,   Crohn's Disease,   Cystic Fibrosis,  Fibromyalgia,   Inflammatory Bowel Disease,  fungal nail disease, Lyme Disease, Celia disease, Lymphoma, Major Depression,  Malignant Melanoma,   Mania,  Melorheostosis,   Meniere's Disease,  Mucopolysaccharidosis , Multiple Sclerosis,  Muscular Dystrophy,  Rheumatoid Arthritis, Alzheimer's Disease, parkison disease, vaginal cancer, epilepsy,  Anxiety Disorders, Autoimmune Disease,   Back Pain,  Back Sprain,   Bipolar Disorder,  Brain Tumour,  Malignant,   Bruxism, Bulimia,  Cervical Disk Disease, cardiovascular disease, Neoplasms, chronic respiratory disease,  mental and behavioural disorder,     Cystic Fibrosis,   Hypertension, Diabetes, asthma,  Inflammatory autoimmune-mediated arthritis.  chronic kidney disease, inflammatory joint disease,  impotence,  feta alcohol spectrum,  Dysthymic Disorder,   Eczema, tuberculosis,  Chronic Fatigue Syndrome, constipation, inflammatory bowel disease, bone cancer, lung cancer. contact him on email- drimolaherbalmademedicine@gmail.com. and also on whatssap- +2347081986098

    ReplyDelete
  48. There was a time in my youth when I felt immortal.

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    Physical therapy. Alternative therapy. Chiropractic.

    Days of "bed rest" watching Jerry Springer.

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    Ever since that fateful day, every so often out of the blue, I'll tweak my back again and relive that fateful day as well as the weeks afterward, nursing it back to health.

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    To your health,

    ReplyDelete
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    ReplyDelete
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    ReplyDelete
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